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A Wish for Wendy
Softball tournament benefiting Cystic Fibrosis research in honor of Wendy Carol Lipman who died 15 days after birth from cystic fibrosis. |
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Ambry Genetics
Testing for CF mutations. Offers a comprehensive screening of CF mutations, plus Poly T Variant analysis, and direct DNA sequencing of exon. |
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Billycook.com
Billy Cook battled cystic fibrosis and died. The site generates funding for patients of this deadly disease. |
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Cindy's Friends
Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee. |
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Cute Petite Chic - A Cystic Fibrosis Web
Basic information with good description of sweat test, memorial page for a girl lost to CF at age 9, details of her last days and link to give in her memory through Great Strides. |
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Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family |
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Cystic Fibrosis Services
A subsidiary of the Cystic Fibrosis Foundation and a national pharmacy that specializes in providing medications to individuals with cystic fibrosis (CF). |
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Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. |
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Cystic-L
Cystic fibrosis information and support, including a vibrant on-line community, via email, a Handbook of information and resources, photos of CFers, a CF Shop and bookstore. |
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CysticFibrosis.com
Internet community for cystic fibrosis patients, families and loved ones. |
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MyCysticFibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team. |
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The Spirit of Lo - Inspirational Book
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child. |
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