HealthBegin.com is a leading
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Children of the Moon A portal site that provides an online community for children, teens and adults with xeroderma pigmentosum.
Xeroderma Pigmentosum Society Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research.
XP Support Group UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.