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Cell Therapy Research Foundation
Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials. |
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DMD Options
Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy. |
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Irina's Cozy Corner and SMA Page
Personal web page of a Russian woman living with Spinal Muscular Atrophy. Includes information on travel, recipes and psychology. English, Russian and Italian versions. |
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Justin's Locker Room
A site by, for, and about Justin Sokolowski, a young man with Werdnig Hoffman's disease or a form of SMA. Lots of pictures of friends and family (including his cats), plus pictures of Justin with many pro and semi-pro athletes he's met. Guestbook. Virginia. |
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Kevin M. Rudolph's Exciting Site
Kevin, who has Duchenne Muscular Dystrophy, attends the University of Louisville and has a web business as well. Interests, hobbies and accomplishments plus lots of MD links. Kentucky. |
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Logan Paige Foundation for Myotonic Dystrophy
Dedicated to educating potential parents about Myotonic Dystrophy and genetic testing. Information about fundraising, both for research and to assist people who cannot afford testing, news, stories, and about Logan Paige. |
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MDA Ride For Life
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May. |
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Muscular Dystrophy Association (Australia)
Extensive information on the range of disorders, research information and many links to onsite publications. Also provides an international support network with a chat service dedicated for use by the worldwide Muscular Dystrophy community. |
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Muscular Dystrophy Association (South Australia)
The Muscular Dystrophy Association of South Australia provides a range of individually designed support services for all persons with muscular dystrophy and neuromuscular disorders, their families and their carer/support provider, including therapy, information, equipment loan and counselling. |
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Muscular Dystrophy Association (USA)
Voluntary health agency providing information and supporting research into neuromuscular diseases, including Muscular Dystrophy. The MDA site contains information about many forms of muscular dystrophy, including lists of ongoing clinical trials, an 'Ask the Experts' feature, and research updates. |
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Muscular Dystrophy Family Foundation
Nonprofit foundation that provides adaptive equipment and emotional support to individuals and families affected by any one of 40 neuromuscular diseases. |
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Muscular Dystrophy Ireland
Voluntary organization in Ireland which provides support for people with muscular dystrophy and their families. |
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Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy is a not-for-profit organization founded in 1994 by parents of children with Duchenne and Becker Muscular Dystrophy. |
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Parent Project Muscular Dystrophy in Nepal
Parent Project Muscular Dystrophy in Nepal focuses on Duchenne and Becker Muscular Dystrophy, by providing practical, medical and emotional support to the people and families affected by the condition. |
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Parent Project UK
Parent Project UK is a charity set up by parents and supporters of boys with Duchenne and Becker Muscular Dystrophy that promotes research to find a cure or viable treatments. |
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The Muscular Dystrophy Campaign (UK)
A UK-based charity which funds medical research and support services for people with neuromuscular conditions. Site contains detailed information about duchenne, becker and many other conditions. Sections on education, care, physiotherapy, research and ways to help raise funds. |
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