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Alliance of Genetic Support Groups
National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions. |
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Cornelia de Lange Syndrome (CdLS) Foundation Outreach
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime. |
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Ideas
A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15). |
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S.O.F.T.
A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders. |
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Trisomy 18 Angel
This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18. |
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Trisomy 18 Support Online Community
Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey. |
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Who is EPI ?
The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria. |
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